Dear Diary: Proof of Something

If I am proof of anything it’s hard work doesn’t pay off, practice doesn’t make perfect and what goes around doesn’t come around.

In reality, you have to be working hard on the right things in the right way, it has to be perfect practice, life isn’t even remotely fair and the universe simply does not care at all.

Ultimately the world will neither miss me nor mourn my loss, I matter only so far as I decide that I do, beyond that, I don’t matter at all. I lack both relevance and significance. My existence continues in large part through luck and cowardice; mostly cowardice.

I live a life of pretend and make believe. I pretend what I do has significance, it matters, it counts, that somehow my life is worthy of something, that I as a person have value and worth. In my make believe world I am wise and knowledgeable and people look up to me and value what I say, they support me and believe I will succeed, that my endeavours valuable for my part I pretend along that my life has value with them.

I know, I am, sadly, and I wish I was not, completely aware, of the sham and masquerade.

I am playing along like it matters because it’s all I know to do, but I do know exactly what is true.

 

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Dear Diary: Manchester is not by the Sea

The seaside, so often the facade of towns long closed down in heart and soul existing was not for me.

This was reflection and calm, the quiet, where people said a cheerful hello while you look out, a gas rig or two between your bench and Norway. A different place, a different sense of time.

A little calm so close to places so familiar and a life so very different to the one I have now.

My obligation fulfilled, respects duly paid, tears respectfully held back, and happy memories built upon the ashes of the past.

My dearest friends a comforting bridge, welcoming arms and helping hands, solace in the storm.

A place does not know, it does not remember, it meant no harm, it held no anger, it will not be bitter, nor will it be sad, it will shed no tears, knowing not the passing of our years. Those we bring, they are ours to leave or take away, memories are our own each day, and the stories ours to tell, like the place lest we too face away.

Dear Diary: 19th July 17, At The Head of the Valley

Back from a weekend in Wales.

For many, this is a simple thing, for my Mouse this was a weekend of overcoming fears. Fear of the unknown, a trip to a new and unfamiliar place via new roads, to the countryside. No urban landscape, no hospital, no backup plan, no safety net, the very darkest of unknowns.

However, it was great. I walked up hills, found peace and solitude, walked in the woods and listened to the river whisper.

I cooked in a little cabin kitchen and connected back to myself.

The urban expanse brings neither comfort nor security, it feeds my fears and imprisons my minds, plays tricks on me and convinces me that outside is the enemy. It is people I fear, people are the cruel, random, violent, betrayers of trust.

Nature has no favourites, it is not cruel, nor kind, it is, it does not change, it seasons have always been and will always be, it is not capricious of malevolent, it does not plot or betray, it has no skeletons, no secret past, nature has not lied, nature does not rewrite the past.

Mr Mouse keeps on Moving, keeps in doing, good one Mr Mouse!

Dear Diary: The Night Is Dark And Full of Terrors

My attacks happen in my sleep.

I wake up, sometimes I am ok.

Sometimes I am not.

Sometimes I am paralysed

Sometimes a little.

Sometimes a lot.

Sometimes I can speak.

Sometimes I slur.

Sometimes I make no sense.

One time it didn’t hurt.

But I woke up.

And sound strummed agony for chords

I tried to smile but that didn’t work

Monday Night Reflection: Back to Normal

That is a lie, of course, there is no back to normal. Not in a bad way, but I am not going back. I had decided to move on before any of this dropped on me, I had changed direction, and normal was a fluid state of moving forward towards something new and different.

Normal was not a set routine or structure, I was developing a new business venture, I was practicing my skills, I was growing myself and exploring directions and possibilities to see what and what not plausible or possible, what could be developed for money and what was best left as artistic endeavour for artistic endeavour’s sake. My business was being grown, not pushed, I was learning from past mistakes, and the pace was consciously, in fact very deliberately slow. Each step was small, and consolidated, assessed and embedded, decisions taken carefully, investments very circumspectly undertaken indeed. I was very keen to be in absolutely no rush to spend money, time, or unnecessary effort in a fruitless endeavour. I was keenly aware that every resource I had was very limited and that my project was one I wanted to grow properly, healthily and strong in that organic way of a business finding its rightful place.

None of that has really changed. I have, I have made no secret that my skills and abilities have been affected, and I am relearning things. The timetable has been set back, and along with that, my blog has had to change from what I really wanted to be doing at this point in time and is not really what I wanted to be sharing either. However, my business, my blog, and my personal life are still there, still being developed and I am still working on each of my goals.

I have had a setback, and in the real sense of that, I am working from behind where I was, however, I am still working slowly, and that, ultimately is all that matters.

So while, there may never be, a back to normal, there is a normal service, and that is coming back.

Dear Diary – After the Hiatus

From Monday 3pm to Friday 3pm stuck in Hospital doing my best not to die of boredom, with so much empty space.

The reality was I shut down. Just to be able to cope I had to not think, no internalise, not be in the moment, not fully present or engaged, and not full focused at all on the future, the past or the present to detach myself from reality and the enforced artificial rules of the situation and my disempowerment.

I survived, the week was an unpleasant dark shadow over my life, holding the time before it in a strange semi-suspense because I knew at some point, coming at short notice, everything had to park for a week. Sensibly, nothing unparkable could be started. Not quite on hold, but really going forward fully either.

Now I am out, I am of course liberated, I am free to do whatever it was that I was unable to do before. Which was?

That is the question, in March so much of what I was doing got ripped away, I hate the melodramatic sound of that. But a few months down the line, it feels more that way now because back then there was the promise that certain things were temporary, that the losses inflicted would be short lived.

Reality has dawned; and I am living with and adjusting to, the new landscape, the shifting sand of what abilities retained, and the extent of skills lost. Those projects are on hold while I have to go and re-learn skills that I need in life. From fine motor skills and co-ordination to emotional intelligence and resilience or understanding, it feels like everything has taken some sort of damage. It may not be impossible, but it is going to take some time.

Of course, I have sabotaged self. My remarkable apparent comeback at the end of May and my stubborn refusal to quit doing whatever I can has led people to think I am ok, after all, here I am living life. That is what you see.

How could they know, the physical pain, the emotional difficulty, the depression, the despair, the frustration of knowing you once could and now can’t; of course they have no idea. And, really, now words can tell the story of being trapped knowing its gone and you might not get that back, or the frustration of being expected to operate on a level you can no longer reach. There is no way to say, this life, the one I was breezing through with ease, no it exhausts me before midday, those things that I could cope with and a hundred more on top, I am crushed by half of them or less, and that finger tapping sounds like you are taking a sledgehammer to my head, but its ok.

The break is over, it is time to move on, step by small step, practice, fail, get up, fall over, get up, make a mess, clean up, carry on, and so on, and so on, every day, every day trying, just trying and hoping to work a little way back, a little way on the dream, and little bit better than yesterday.

Poetry Corner – The Real Me

Sometimes you forget
Sometimes you believe
Sometimes you don’t pretend
You are not who you are
Not make believe or fantasy

You believe the empty words
The things they say because they should
Because they should be kind
They are the encouraging sort

Some days I forget they expect me to fail
Some days I believe their belief is real
Some days I am not pretending, it’s not an act

But then I see what is real
And I carry on, no big deal