Dear Diary: Monday Recognition

I am up, out of bed, my wife gets me up and makes me breakfast bless her.

I guess forgetting to eat for three days may have given the game away?

I am here, doing that thing I do, except. previously in my life, I had stuff I just had to or my life would have collapsed. You know, no house, nothing collapsed. Now the problem is, if I do nothing, nothing collapses.

Nothing would change if I did nothing, the bills paid, my wife would get the shopping and pick up every bit of slack, and wouldn’t hate me for it. In fact, the more I deteriorated, she would worry and look to get me help, and do more to help me get better, being left to rot, would be the very last thing that would happen.

So how do I cope, I have nothing to do, no job left, everyone survives well without me, but I know I am not causing anything to miss a beat either.

The world really wouldn’t change, it wouldn’t miss me because it already doesn’t.

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Thinking Out Loud: I used to try really hard

It seems a very long time ago that I downloaded a blog planner and I was reading pages and pages on how to create content that would engage readers and grow an audience.

I would be carefully timetabling days so I could create content, especially my Monday Night Reflection, which was so very dear to me, that would be valuable and well thought out. Monday Night Reflections were particularly special because I was letting the blogosphere into my thoughts and sharing genuinely hoping that I was helping create something that would be of value to someone.

I knew that staying anonymous would limit way in which I could grow, but I tried my best to use strategies that would create an audience and some organic traction because I wanted engagement, my heartfelt wish was that someone wouldn’t hurt like I did, or would see that, hurting was okay, and that there was through it to get to.

Thing’s changed, and I thought perhaps I could document overcoming the attacks of what are most likely hemiplegic migraine, perhaps documenting survival in a different way, the challenge of having my creative ability taken, robbed even and learning, relearning, sometime learning daily to do something that had been a joy and such a big part of my day would be something I could share.

I found sharing impossible, there was nothing to share, it was blank, you just write rubbish and bin it, till its not rubbish and you feel comfortable sharing what you have. My failed attempts are not something I keep, like falling of a cycle, not something you really need to post for the world to see, failed is failed.

Thing is, you have stats, good old Word Press, and there they are not changing, there I was dedicated as an author to my craft planning and working to create, and there I was dead in the water, lost at sea, struggling to express myself at all.

I care, of course I do, every one who creates cares, I want people to engage, everyone with a blog is really saying look at me, I am no exception, what I mean to say is, I am here creating, I hope you like it, I am sorry if its haphazard, random, without focus or purpose, that’s my life right now, that’s is me, that is my blog and my creativity, I gave the structure thing a go, I couldn’t hack it, it didn’t fit, I am too old, and just a little bit too grumpy to wear things I don’t like.

Poetry Corner: Migraine

Tears escape, torn up inside

Nothing right, scared to die

 

Too much everything becomes the pain I feel

The light, the sound they hurt so very much

Like a sledge hammer even the lightest touch

 

No such thing as silence, there is no rest

I hear in colour, the sheets like sandpaper at best

I want to sleep, the shadows terrify heart

My days and nights, my conscious drifting apart

 

The sea and darkness surround my art and thought

I would drift or drown, I have forgotten how to even fail

I have no idea about what it is that will prevail

It is dark, I’m lost, drifting to who knows where

Don’t destroy those who dare to be close and care

Poetry Corner: Monday Does Not Care

The morning our beautiful mistress, our most heartless master,

Beckons us to our dream,

Cares not of triumph nor disaster.

 

The sun rises and sets indifferent to them all,

The dust it gathers before even the first night has come to fall.

Agony and joy, the cheers, imposters call.

 

It never cared about the journey,

Time never cared about the battle,

Time has on carried regardless, it never cared at all.

Dear Diary: You Can Never Hide

One of the great things about life is we can hide, work, family, hobbies, athletic endeavour combinations of those afford us wonderful opportunities to hide away from reality.

While we get away and pursue some noble and worthwhile goal to the applause of our peers, we can hide from facing something bigger, and more frightening than the challenge we tackle for the world to see.

But when the goal is achieved, the project is over, we instantly seek the next one to avoid the chasm and void of light where we know we face the truth we have been hiding from all the time, so we stay in the darkness calling light.

How long can we pull the trick of self-delusion, do we pull it at all?

Dear Diary: The Day After Blues

It’s not really the day after, imagine it’s Monday

The weekend was the “weekend”, Sunday was the “day”. A year of work, 5 months of pure heartache and if anyone follows, I would guess you could call it heartache and real pain physical and mental have been my, and my family’s companion through life.

Probably giving way too much away, I have another life and this weekend that life was my life, the biggest day of the year so far for that life.

It’s over, its happened. Monday the sun came up, my son went to work, my wife went to work. There was a beautiful cake and a note on the side that he and his adorable girlfriend had made. There are of course messages on my social media posts saying well done.

But, the rain falls, the traffic flows, the TV didn’t record like it should, life on Monday morning ultimately doesn’t care if I won or lost. My ex doesn’t care, my biological children don’t care nor will my eldest care on our Skype. My news won’t even wrap chips.

Tuesday has become indifferent, the rain it lashes down, the shopping needs doing, and the carpet needs a hoover, the milk is running out too.

 

Thinking Out Loud: Staring at the Future

It has taken me a long time to face writing this: recently an infection put me back in hospital. Opposite someone with hemiplegic migraines.

They were under a regional specialist centre with a proper specialist consultant and were under a treatment team with multiple therapies. They were exactly where I am supposed to want to be, they followed the advice of every attack getting admitted.

It was horrific. The man was a shell, the ward was noisy and chaotic, and they had no idea how to treat him, worse, they were random and haphazard with his pain treatment, most of the time he curled facemask on, earphones in pain trying to make it through the day to his release.

He saw no treatment, he was pushing his family away as he failed to cope with the emotional effects of attacks, and each admission robbed him of days and weeks of his life, you could see him imprisoned by his “disease” and crippled by doing exactly what he was told to do. Exactly what I am supposed to do.
We spoke, he could not believe that my attacks were both longer and more debilitating, that I had no support in place, and that I was not being admitted like he was each attack. His disbelief crashed head first into the fact that, while we shared symptoms and experience, I had carried on doing life in direct defiance of medical advice and was doing well, and he, doing what he had been told, further down the road than me, was now virtually crippled and imprisoned by his condition.

We spoke only that afternoon, he left. I doubt he will change, he is embedded in being a patient and invested in the model where he would be saved by modern medicine. I don’t believe in white knights on unicorn’s, as a child I learned very early that it doesn’t matter how loud or how long you cry, how much it hurts, how bad it gets no one is coming to save you.

Perhaps then, out of the damage of those abuse years has come a useful toolkit for journey ahead

Dear Diary – It’s​ All About Where You Look

If you look at my blog then I really haven’t been up to much at all. And, in a way I haven’t.

The truth is I have made a conscious effort to stay away from computers and technology much more. Although I confess to being an Instagram and Spotify person, those two I really like and are great unwinding tools for me, the rest I have tried to just leave alone. I have been successful, pretty much too.

I went away to Wales, and took some pictures which I will edit and share because it a beautiful place, but it reminded me that there is the world outside, and getting sick and all that involved, did eventually, lead to me making adjustments to how I am living life and what is taking priority. As I mentioned, this summer is an opportunity in my competitive life, which this blog, and, in fact, no blog, is about, that may never come round again, and I am lucky to have the opportunity to devote a lot of time, effort and energy to that. Right, now, somehow, it is entirely possible, and this shocks me to contemplate, I am actually one of the better competitors, in my category, in the country.

It really depends where you look, creatively, my office is still very much a declutter and dejunk project. I really have too much in too small a space, and I could not effectively do what I wanted to do in the space I had, and it was really not working. So I am committed to finally, sorting that aspect of my creative life out, and using what is a big space effectively towards a goal, and yes I do have a goal. But that is taking time because it is not a priority.

Also, I am learning skills and losing some of the fears that my “illness”/neurological issues have created and am getting the confidence to slowly embark on ventures and ideas again, but I know this is going to be a very very slow process, both because its not something I can put in number one spot immediately, and because I just do not have the energy levels I had before to devote to anything. And, also wisdom as taught me that cakes bake better on the right heat for the right time, and rushing never makes for a good final product.

So, unlike other Dear Diary’s this more of an update, check in, where i am, which is here, doing my thing, trying to do life and tackle the challenges this blog has talked about, and which are still very real and present, while focussing on the opportunity I have in my competitive life, and yearning a little for my creative Mouse to get out and scurry soon

Monday Night Reflection: Back to Normal

That is a lie, of course, there is no back to normal. Not in a bad way, but I am not going back. I had decided to move on before any of this dropped on me, I had changed direction, and normal was a fluid state of moving forward towards something new and different.

Normal was not a set routine or structure, I was developing a new business venture, I was practicing my skills, I was growing myself and exploring directions and possibilities to see what and what not plausible or possible, what could be developed for money and what was best left as artistic endeavour for artistic endeavour’s sake. My business was being grown, not pushed, I was learning from past mistakes, and the pace was consciously, in fact very deliberately slow. Each step was small, and consolidated, assessed and embedded, decisions taken carefully, investments very circumspectly undertaken indeed. I was very keen to be in absolutely no rush to spend money, time, or unnecessary effort in a fruitless endeavour. I was keenly aware that every resource I had was very limited and that my project was one I wanted to grow properly, healthily and strong in that organic way of a business finding its rightful place.

None of that has really changed. I have, I have made no secret that my skills and abilities have been affected, and I am relearning things. The timetable has been set back, and along with that, my blog has had to change from what I really wanted to be doing at this point in time and is not really what I wanted to be sharing either. However, my business, my blog, and my personal life are still there, still being developed and I am still working on each of my goals.

I have had a setback, and in the real sense of that, I am working from behind where I was, however, I am still working slowly, and that, ultimately is all that matters.

So while, there may never be, a back to normal, there is a normal service, and that is coming back.

Monday Night Reflection – Success and Failure

I planned to take a week off after competing and it ended up being a very good idea. The competition when exceptionally well and I secured my qualification for the British Finals as I set out to do, came back healthy and am now on course to go from the British Finals to the World Championships and be considered a contender.

That is the success, and I am not going to down play that success, I am still stunned to have this amazing opportunity at all, let alone after all that has happened so far this year. The weekend was successful with many improvements in self-management and performance management across the whole time which point towards a successful British performance and importantly that this will open up not just the opportunity to represent Britain at world level but also to be a legitimate podium contender. It is impossible to convey how surreal and odd it feels to be writing that about myself, and how I am proud of what I have done, but at the same time it really does not feel very real so I am not really that proud because I don’t feel I have done that much. Although, as I am told pretty regularly, to have the opportunity only 6 weeks after lying in a hospital with paralysis, its one hell of a comeback.

However, when I got home it had been 8 days without an attack, and while I made it through the weekend out the house when I got in I sat on the sofa and I went out. The full monty, this was a high register attack, lasting well over half an hour with the loss of speech, tone, and with paralysis. This would have been a hospital admission if we did not already know nothing would happen. I was devastated. I knew what was coming and it did, the hangover effects, this time it included the slightly hilarious not being able remember how to write a question mark.

By Wednesday most of the glitchyness was gone, most of my understanding and cognition was back, my emotional fragility was on the way out, and my motor skills were returning, left behind were a headache and dizziness. Its now 8 days later, and several smaller attacks later as well and I am at best 80% back to where I was 6pm on that Sunday night.

That was the failure. It probably feels like a bigger set back than it really is, but it is a real setback. I did have plans for the week after half term and so far to day I have lost most of the morning because I passed out, and I cant drive till we are sure I am safe which along with my motor skills and paralysis changes the athletic endeavour part of my life significantly. But I am still embarking on this part of my personal, professional and life journey back from where I really wanted to be. Even this reflection is not the reflection I would have wanted to be writing.

This is Monday, last week pushed me back, but I have achievement locked, and I have plans to grow my business project slowly but surely, I have another small scale little income project running and that can run its life and earn its little bit while it burns too, and I am busy taking the steps I can to get from where I am to where I want to be accepting they are smaller than I may have wanted or anticipated but that a step is a step nonetheless and I can build from where I am.

My plans have not changed, they may just take a little longer and happen a little more slowly.