Monday Night Reflection: Back to Normal

That is a lie, of course, there is no back to normal. Not in a bad way, but I am not going back. I had decided to move on before any of this dropped on me, I had changed direction, and normal was a fluid state of moving forward towards something new and different.

Normal was not a set routine or structure, I was developing a new business venture, I was practicing my skills, I was growing myself and exploring directions and possibilities to see what and what not plausible or possible, what could be developed for money and what was best left as artistic endeavour for artistic endeavour’s sake. My business was being grown, not pushed, I was learning from past mistakes, and the pace was consciously, in fact very deliberately slow. Each step was small, and consolidated, assessed and embedded, decisions taken carefully, investments very circumspectly undertaken indeed. I was very keen to be in absolutely no rush to spend money, time, or unnecessary effort in a fruitless endeavour. I was keenly aware that every resource I had was very limited and that my project was one I wanted to grow properly, healthily and strong in that organic way of a business finding its rightful place.

None of that has really changed. I have, I have made no secret that my skills and abilities have been affected, and I am relearning things. The timetable has been set back, and along with that, my blog has had to change from what I really wanted to be doing at this point in time and is not really what I wanted to be sharing either. However, my business, my blog, and my personal life are still there, still being developed and I am still working on each of my goals.

I have had a setback, and in the real sense of that, I am working from behind where I was, however, I am still working slowly, and that, ultimately is all that matters.

So while, there may never be, a back to normal, there is a normal service, and that is coming back.

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Monday Night Reflection – Getting Philosophical

I have resisted for a while, but lately, it has been really very difficult not to turn very simple questions into mini or maybe not so mini motivational speeches about what is really important in life.

What I am saying isn’t new to me, and really is not some sort of amazing light bulb epiphany at all, I have known it for a quite a while. It is the coming together of threads that have been around for a while, so this is not a new fabric that I am weaving. This behaviour has left me wondering, why now? Clearly, something has to have changed for my behaviour to have changed in what is a not terribly subtle way.

I have exchanged some intellectual knowledge for experience recently; the experience did not change the intellectual knowledge, rather confirmed it with field data. However, in terms of what was important, and what people who knew the days ahead would be days not months or years, considered important, I already had good field data, so my own, not sure if I will see tomorrow experience did not cause a change even if it added my own data to the set.

I am also not sure any new data has been added, or that anything new was required for me to realise the unique and genuinely blessed situation in which I currently reside. So while I face challenges, the place I face them from is unique for me, and objectively one of the better places to be. I am also aware or the privileges and blessings or my situation and the experiences that I have had on my way here, and how in facing any challenge I am equipped in ways other people are not so fortunate to be. This is not new, and not to do down my own situation, which is not great, there are definitely people worse off, and a lot of worse situations to be in facing what I face.

So I am not sure what has happened, it’s been a while since my birthday, no one close to me has died, although yes people have passed away in my world, and their loss did sadden me to a tear or two, especially those I knew, perhaps it is that. But in general, there has been no change bar the passing of time from a week or a couple of weeks ago when I was not so introspective nor so philosophical.

Which has been my week, rather mundane tasks of sorting out my workspace and getting rid of things that should have been gone long ago, having bad days where nothing happened, and trying to gently sketch out the best way forward and what done looks like now that my personal landscape has changed. Things are definitely slower and taking more time, however, I am not convinced that is a bad change, and I my enthusiasm has changed in quality.

My business head knows that the best business makes money when the owner is not working as well as when the business is working, and it also knows that a lot of markets are very saturated with awesome unique products from very talented people. Add to that, skills in new media promotion and things that I am not sure I could do even if I wanted to do them, which I am not sure I do, I am having to work out a plan, strategy and even define purpose carefully. Perhaps learning from my previous, not outright failure, but definitely not success either enterprise and the things I didn’t do with that business, and how I massively overextended myself and my workload in that venture.

I still have no idea why these inputs have made me so philosophical.

Monday Night Reflection: Slow Boat or Express Train

I do make a point of writing my Monday Night Reflection as close to real time as possible and today is a case in point. Today I got news that following my twenty minute EEG, which was, of course, a downgrade from the ambulatory EEG originally ordered, I have after an administrative delay, being booked for a three-day ambulatory EEG after all. This suggests that the short EEG was not good enough to show me the door.

This is significant because I have felt that my recovery has been very much more slow boat than express train and that I have significant skills deficits that are not really coming back in the area of motor skills, something showing up in my typing error statistics which are up over 500%, if ever there was a measure that a skill was a bit affected. Although thanks to Grammarly, it would appear my writing vocabulary is largely unaffected, those who know me have noted that I still lisp, slur, stammer and have vocal issues previously not present and that my memory defects are noticeable, especially when I get tired.

So while I am no fan of a reflection heavily medical in focus, it is difficult because I am two people. The person I can talk about and the person I can not talk about too much; and at this present moment the person I can not talk about a lot is driving and in charge, it is a very important week, it is probably the most important week of my year in that life. This upcoming weekend being the most important weekend of the year for that life; without melodrama what happens will determine the rest of my year, where I go, what I do. So, rather unsurprisingly, the combination of my motor skill issues which massively impact that life, my problems writing, which are my other life, and my recovery which is all my life have given me what is, in the day to day, a very quiet life as I have had an extraordinary narrow focus as we as a team, been focussed on this one goal and getting through it.

It is partly frustrating that I have to separate lives, but it is a necessity, after all, I lost the battle for public identity to my abuser and this blog is for all those who like me lost that battle and have to find their voice. Because, I made it back, in that life although I am a long way from where I was, I am still on course to make my year-end goal, and I am still processing that. It is hard to reflect on anything else, it is dominating my physical and mental landscape that I left hospital first week in April will partial paralysis and speech issues not knowing when the next attack would be, the longest I have gone is 6 days without any sort of attack, yet despite all the issues and challenges, I am 6 days from being a competitive athlete again; taking my first step on the road to a World Championships where I am likely to be considered a legitimate contender.

How do you think about anything else, whatever challenges I face today, and I hurt, and I ache and my motor skills are awful, my coordination is woeful, the fact that is a sentence that is possible does not seem like it is real life. Yet, it’s my life, and I could very possibly be writing a Hollywood ending in my own little life.

So apologies, it’s not about Mr Mouse, it’s about Me, but not about me because my abuser is out there and she would ruin everything with her lies, so I don’t want fame or to be famous, so it’s not a big sport that gets into newspapers or internet headlines. The Mouse and I will tell our story together because it is our journey together, from the abuse of childhood and being held back for years by first an abusive parent and then abusive wife who would both sabotage or make me give up my dreams, telling me I was selfish to the wife who did more than just give permission, but who did what it took to put their wrong right.

Success may be a slow boat, it can be an express train, but it is never our own story, it takes people to help us, support us, open doors, believe in us and hold us up; every cliche about teamwork making the dream work is made real every time we come together and help someone even just a little bit.

After this week I am taking some time off everything, and I have been working on some poems to publish, I have to photography trips planned and my car will hopefully be fixed soon so I can make those, so gradually I am getting back to my normal. While hopefully, I can draw my line and Mr Mouse can create again; Mr Mouse is committed to a book called Squeeking At the Top of My Voice sometime late in 2018, I am really excited at what he has planned.

Monday Night Reflection: Nothing To See Here

It is difficult to reflect on a week, where, to my mind, very little of what happened is Mouse related. Mr Mouse, it would appear has not been busy. Where Mr Mouse was once busy sorting out and tidying around making sense of my world and doing a great job in the background of getting things done for me there is now space. Worse, a slightly sticky space bar is hindering my efforts, which is perhaps the problem.

At the moment all my sense are turned way up, sounds hurt, touches, tastes, they all cause physical pain at very low intensities, on a certain level, I am guessing this is what autism must feel like because input, is generally, not a pleasant thing. And life is all about input, sleep isn’t restful and tired, sick, nausea and generally feeling in pain in some way is what it’s all about. Creatively everything is dry, projects are dry, work is gone, nothing to do, no inclination to do it, and recovery has hit a wall with even physical progress coming and going. It has been another tough week after a tough week. So while the stats people could say the trend on the graph is positive, it is positive trend on trend, its a very slow trend and the negatives are big, the downs are big, the relapses are huge and the experience is anything but what someone would call fun.

It would be accurate to say, at least some, if not some large chunks of the time, I have started to feel more than just a little sorry for myself. Because, I am not going anywhere or getting anything done, and if I am making a little progress, one I can’t share it and two it is only back to a level far below the level I was at anyway before all of this started back in March. Imagine playing in an orchestra and then having to back and start grade levels, that is the equivalent. At the same time, the physical pain is intense and debilitating, my mind is working at a physically tiring level, so writing this is the mental equivalent of a workout when once it was easy to write and introspect. In fact, not only was it easy, it was a fun and helpful, now just writing an email to a friend is taxing and difficult as a task.

It is difficult because, I have to recognise that is, really, very early days. I don’t have a cast to see or a wound to see healing, which is a huge part of the problem, it is all happening in my head and inside where no one can see what is going on, and it is messing with my emotional and coping capacities as well as impacting on my personality. The impact is on how I see and feel about myself, there are suicidal thoughts and my self-talk is very negative, you could say I am depressed, but at the same time, I am not depressed in how I have experienced depression in my life previously. This is a complex awareness that I am two people existing in the same space at the same time failing to cope with the existence of each other. This is the stuff my Mouse used to handle for me, this is what I let my mind sort out in the background my focusing on positive goals and helping others. Those things do not work, I am tired, my concentration has gone and my memory awful, but of course I have not given up. The two, the depths of despair and abandonment alongside hope and optimism are together interwoven bound in single thoughts.

The past is the past, and this has happened, the future I thought I had, it is not the same, and where I had a plan, I do not even have a plan about how to plan anymore. I would say I am fighting, but I am, it feels, more trying to work out who the opponent is, before I start fighting back. So far it seems the opponent is me, or more precisely a me that has started to malfunction and is apparently going to start working again spontaneously. There is no fight, just waiting, which is perhaps, ultimately, why I cannot cope. Previously I have a process, a fight, something to do, and this time, all I can find is, wait and time does the job. Great, if you are on the express train, not so great for those on the slow boat. I think I didn’t get off the harbour here.

The purpose of reflection is to do, and that is where I am coming up blank each and every time, I have no do. So far, it’s do what I can still do, setbacks like getting food poisoning included, and keep looking for new opportunities and avenues to make progress, even if, so far, they have not opened up or become apparent.

Dear Diary 14th April 2017

I have nothing to say

My voice has gone literally and metaphorically

I am scared to sleep tonight

Scared to say I had a small attack

My mouth is numb and my head is throbbing

I know the signs now, even when they are mild

Staying awake doesn’t change a thing

Sleeping gets it over with

But still I am scared

What if this time is the time I don’t make it back?

Dear Diary: 20th February 2017

Don’t stroke the Mouse!

Mouse was rushed into hospital last Tuesday with a suspected stroke.

Nearly a week later all we can say for definite is that Thursday night his brain showed no sign of damage.

20 stroke like episodes later Mouse can barely move his left side or speak.

His NHS experience is far from positive but with every reason to be down my brave Mouse is still upbeat and planning new projects for when he finally comes home.

Mrs Mouse

Monday Night Reflection: Logan

Apologies to those who haven’t seen the film, this will no doubt have a spoiler in it. This is not a film review, instead, Logan, like other fictional works became a mirror in which I could see myself more clearly. Great writing, great story telling, whatever the medium talks intimately to its audience, the very best covertly seduces the audience by first entertaining, and by that means lowers their defences so that the piece can speak to those who are willing to listen.

Some films and works are overt in their message, there are self-consciously preaching and reaching for a reaction and response. Usually they achieve their goal of an Oscar nomination or two, or perhaps the equivalent “art-house” recognition that they were born to seek. However, in my mind, the greatest achievement is to talk and embed a thought in something covertly from the Christian allegory of Wall-E to the crushing grief and loss woven into the fabric of Rocky Balboa, such writing is able to stop us dead in our tracks and cut through all our defences precisely because it hides in plain sight while we sought distraction from our lives and struggles.

And so we meet Logan, the once indestructible Logan, the anti-hero for the ages, moody and broody, reluctant but the first into battle for the right cause, driving a Limo at a 4th rate stripper bar. This Logan has a limp, is clearly old and sick. Our Hero has fallen. When we met Logan he was drinking and fighting in a bar for money, running away, this Logan is working to support and care for his old friend Charles Xavier, drinking to hide from the past. The once brilliant mind now dying with dementia, and Caliban literally hiding from the light, like Logan seeking redemption that he cannot find.

The world has changed, Logan and his kind have become  irrelevant and forgotten, their lives passed into mythology and fairy-tales for children and disenchanted youth. Our protagonists are haunted by their failures, hurts and the death of those they loved, they no longer have a place and are simply waiting out their days till death will release them from their suffering. Logan self-medicating, Caliban obsessing and Charles losing his battle with demntia, needing to medicate himself to keep others safe.

If I were twenty, thirty even these would be characters and perhaps little more than back story giving depth to what is to come. I would perhaps focus on the emerging and the new, but I am forty-five. I have lost loved ones, I have made mistakes I cannot change and I carry regrets. Like Logan, I am no longer indestructible, my body has let me down and broken, my place in the world was taken and I am left slightly irrelevant without a place in a world I no longer really want to be part of. Like Logan, I want to pass peacefully, without incident or drama through the days and I am tempted to self-medicate away the pain both physical and emotional. I am not alone, this is the basis of the rather dismissed mid-life crisis, where you realise you have less years left (statistically) than you have lived, where people get sick, they die and you know why people wear sunglasses at winter funerals. And, while many are peaking in their career, many of us never peaked, never had much of a career and see that their time is passing, perhaps past.

It is not all gloomy and black, of course, there are things to celebrate in life, however, those are fragile. Many of us have had those stripped away through no fault of our own, hard work rewarded by being laid off because we were top of a pay grade. We have achieved what we were told was the best thing to achieve and it is nothing at all. The curse of self awareness. The Power-Rangers Movie or Cars 3,  I don’t get to take my children, while other parents will complain and see this a chore, we squander the gifts too easily, and when they are gone we regret we did not cherish them more.

And so Logan is a reflection of us, we see our lives in the characters or we see nothing. If you see nothing then I am slightly envious, because while there are only elements of crossover with these ultimately fictional characters, they are some of the most painful elements of my life. I have tried to hide away and drink, as well as drug my way through life because it hurt to much to face reality. I am keenly aware that as a choice these are on my shelf and while they are not “go-to” so much as they once were, they are preferred ingredients.

Part of me is happy to pass gently and relatively quickly to a state or irrelevance, I have lost faith in a world where I have never felt at home. I have never felt of a place, and the places I feel most connected to I have only visited a handful of times and never lived. I am disconnected completely from any sort of family and have never wanted any connection, when their lives crossed I felt no affinity or desire to foster relationship. Their concerns and focus alien, and their drama’s and big deals seemed irrelevant and trivial compared to what matters. The tie of blood no bond at all. And so it is with the world, I see hate and suspicion growing with an agenda with which I want no part. Not even discussion, because that assumes they are legitimately objects for consideration, and in my world they are not. #notmyworld perhaps?

I have to walk in this world, despite my intense desire to be apart and away. I find myself dragged in and helping others against my better instincts, and I am no hero. I hope simply that what has happened to me can stop someone going where I have gone and feeling what I have felt.

Leave the storehouse of regrets untouched and gathering dust.